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Normal is such a touchy word for parents. All parents. But especially for parents of children with "issues."
The dystopian novel,
1984, made a big impression on me in high school. Especially the concept of doublespeak. So (probably stepping on toes now- but hear me out) when I hear a parent of a child with a g-tube or a child that is in a wheel-chair, or a child with the same condition as my 4 year old defensively call their child normal or differently-abled I immediately think they are just playing games with language.
Call it what you like, but the norm is for people to be able to walk, chew their food, go hours between meals.
Webster defines normal :
2
a : according with, constituting, or not deviating from a norm, rule, or principle
b : conforming to a type, standard, or regular pattern 3
: occurring naturally <normal immunity>
It's not normal to need medication because your body is missing an enzyme. It's not normal for a four year old to have to drink cornstarch before bed and then be fed again in the middle of the night. It is most definitely not normal to have seizures caused by severe hypoglycemia just because you slept a bit too long.
So, to the random adult who asked not me, but my 4 year old, "What is wrong with you?", when my 4 year old's medic-alert bracelet was in view. "Shame on you! Mind your own business and learn some social skills."
However, is something wrong with my 4 year old? Yes, his medical condition is
not normal. Not by any stretch of the imagination. In fact it is extremely rare.
So is my son normal? No. Yes. It depends.
Does he think he is normal? Yes.
Will he always think he is normal? I don't know- I bet he'll have to decide that on his own.
The only thing I know with absolute surety is that even though I have to give him his meds. watch his energy levels, feed him constantly, I also
have to treat him like a regular boy who is going to grow up to be a man.
In one way he is completely and absolutely normal. He, like everyone else on the planet, was created for one purpose- God's.
"For who has known the mind of the Lord?
Or who has become His counselor?"
"Or who has first given to Him and it shall be repaid to him?"
For of Him and through Him and to Him are all things, to whom be glory forever. Amen.
-Romans 11:34-36