FOD's N Fun

August 25, 2010 by Rieshy

I've realized something that I've subconsciously noticed but never thought through.  For a mom like me, with two children with FOD's it was really interesting and exciting. 

Yesterday, for the first time, I took my 4 and 2 year olds to our library's story hour.   I scheduled the trip so that the boys had had a snack right before we left the house.

The Event: 
  •  My 4 year old in particular is loving it.  He sings and claps along in rapt attention.  They do the crafts.
  • Fun. Excitement.  My 4 year old writes his name on his craft.  By himself, while I am helping the 2 year old.  Evidently he's learned to print by osmosis.
  • Time passes.  I help my 8 and 11 year old children find some books.  I check the clock.  It's been two hours since the boy's snack.  Two hours of fun and excitement. 
  • We need to leave.  I've been monitoring the 4 year old.  Normally he can go as long as three hours without eating.
  • He's not falling apart.  However, he's also no longer reading or looking at things.  He wanders after me making his teeth snap together.  Loud clicking sounds. No one else notices.  
  • Suddenly I realize that he's using his mandibular joint to self-calm.
At home when his sugars drop he typically falls apart and/or starts arguing or fighting.  He has a weird high-pitched cry that everyone in the family both hates and instantly can recognize as a blood sugar "alarm."

But he's 4 now.  Public embarrassment is suddenly an issue for him, something he'd rather avoid.  He's trying not to fall apart in public.  He is "centering" himself with his jaw.

Isn't that remarkable?

It wasn't a crisis. We left and had a high-carb + protein snack and he was fine. Evidently story time is very exciting- and exciting, for a FOD'er like my son, means burning lots of energy.

This is the beauty of blogging, it helps me organize the puzzle-pieces of FOD's yet it is impossible to bore acquaintances (unless they are masochists or don't know about the back-button) with extraneous health info.  I can write and write... evidently, I process information through my fingertips.

Coping through typing. Coping through mandibular joint compression...


Melanie said...

I totally agree with coping through typing!

Rieshy said...


I think it's the fact that you have to organize your thoughts more thoroughly in order to write them.

As far as Jack goes- I wonder if he'll eventually be able to verbalize a hypoglycemic episode or if the episode itself will always prevent him from verbalizing. -Maybe it will just depend on how quickly it comes on.

Between You and Me said...

love this...I have always processed with gives me a chance to really think about what I'm feeling.

*my husband knows to burn the journals if something happens to me!!

Unknown said...

These posts always interest me- what your daily life is like is very different from mine, but I am always encouraged after reading your posts...

Anonymous said...

Hi new friend, I am now following you via MBC.

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